9-years-old Polya has a serious congenital disease – spinal muscular amyotrophy. All muscles gradually atrophy. The girl can neither walk nor stand on her own. Her body is constrained by a rigid corset, and the world is accessible only with a wheelchair. Both the chair and the corset help the girl to live and do what she loves – drawing, reading, going to the pool. And yet, the disease destroys her body – due to the lack of muscle tone, the spine began to “fall” and now bent as much as 90 degrees, squeezing the lung, heart and blood vessels. All together jeopardizes her life.
Going to bed, Polya takes off her corset, but she cannot breathe on her own – the lung volume is critically small, and the lung muscles are too weak to pump air. Therefore, she must breathe through a breathing apparatus at night.
The girl urgently needs an operation to straighten and strengthen her spine. This will help empty the lung and improve blood flow to the heart and other organs. However, Polya needs a special construction that can expand as the girl grows. The ordinary spinal implants may require 10 or more difficult surgeries during the period of growth. This is very risky for a child with SMA and one working lung. Polya ‘s body cannot withstand such an amount of anesthesia and blood loss. What can be done? The doctors advised to find a clinic where they use the innovative MAGEC (Magnetic Expansion Control) system. This is a set of special rods that will be placed along the spine once, and later they can be expanded with the use of an external magnetic device without surgery.
German doctors are ready to help Polina. This requires 70 thousand Euros.
Polina is from Gorlovka. In 2015, due to hostilities, she, her mother and sister were forced to abandon thier house. Now they are renting an apartment near Kharkov. Since the girl needs constant care, her mother cannot work.
Let’s help the child!